Resources

The following resources are provided as an online library of documents, organizations and associations that can help you find support groups and counseling; guide you through conversations and end-of-life planning; offer templates of documents you should consider implementing, and direct you to studies and research about the subject all of us face together, end-of-life.

If there are other resources you are interested in, or know of, that should be included, please contact The Alliance for Living and Dying Well and we will be happy to assist you and/or add a new resource to this list.

Local

Grief Counseling

• Hospice of Santa Barbara
• Cancer Center Santa Barbara

Bereavement Support Groups

• Hospice of Santa Barbara
• The Compassionate Friends, Santa Maria (805) 937-8939
• Visiting Nurses and Hospice Care

Life-Changing Illness/Injury Support Groups

• Alzheimer’s Association, California Central Coast Chapter
• Jodi House Brain Injury Support Center
• Cancer Center Santa Barbara
• Multiple Sclerosis Southern California, Channel Islands Office, (805) 682-8783

Five Wishes Counseling

• Alliance for Living & Dying Well (by appointment only)
• Hospice of Santa Barbara
• Visiting Nurses and Hospice Care

Palliative Care Resources

• Hospice of Santa Barbara
• Cancer Center Santa Barbara
• Visiting Nurses & Hospice Care
• Community Palliative Care (Out Patient) (805) 690-6212
• Cottage Hospital Palliative Care Consultation (805) 569-8393

Hospice and Home Health Care

• Visiting Nurse & Hospice Care of Santa Barbara
• Hospice Partners of the Central Coast
• Marian Hospice

Residential Hospice Facilities

• Sarah House
• Serenity House, Visiting Nurses & Hospice Care

National

End-of-Life Planning

• AARP End-of-Life
• Adventures in Caring Foundation
• Aging with Dignity “Five Wishes”
• American Bar Association Consumer’s Toolkit for Healthcare Planning
• American Hospital Association “Put It In Writing”
• California Healthcare Foundation Physicians Orders for Life-Sustaining Treatment (POLST)
• Caring Connections, California Advance Directive
• Caring Connections, Planning Ahead
• Center for Practical Bioethics Caring Conversation Workbook
• Dream Foundation
• Life Chronicles

Articles / Research

• Study Linking End-of-Life Directives with Hospitalization has Implications for California, July 16, 2010, California Healthline 
• New England Journal of Medicine, “Advance Directives and Outcomes of Surrogate Decision Making before Death,” by Maria J. Silveira, M.D., M.P.H., Scott Y.H. Kim, M.D., Ph.D., and Kenneth M. Langa, M.D., Ph.D., April 1, 2010
• Start Talking About Life's End Well in Advance, Gail Austin Cooney, M.D, president, American Academy of Hospice and Palliative Medicine, medical director, Hospice of Palm Beach County, Fla., and clinical assistant professor, Nova Southeastern University, Fort Lauderdale-Davie, Fla.; Beverly and Mike Bus, Wellington, Fla.; Family Caregiver Alliance, April 2, 2010
• British Medical Journal, "The impact of advance care planning on end of life care in elderly patients: randomised controlled trial," 2009
• Agency for Healthcare Research and Quality, “Talking About End-of-life Treatment Decisions,” by Carolyn M. Clancy, M.D., July 7, 2009
• The Pew Research Center, “More Americans Discussing – and Planning – End-of-Life Treatment,” January 2006.

Email us at info@allianceforlivinganddyingwell.org